A Change of Plans

As if the past few days haven't been trying enough with all of the focus on what Addie Claire can and can't eat...cue option of biopsy. Now, we originally decided on the DNA/fecal test because we were tired of going to the doctor and being given another medicine to try. We now know that she has a gluten sensitivity and the celiac gene, but does that mean celiac disease? Ummm, no. We have tossed around whether or not to have a biopsy to either confirm or deny the celiac diagnosis...after all, the diet change would be the same, right? Not necessarily, and yes. Confused? Good, so am I!! Well, not really, but I was!

Going completely gluten free is a HUGE undertaking, which involves new pots and pans, appliances and so forth in order to avoid cross contamination. I just can't even explain the dramatic change this is. Now...if she has the disease, the change is non-negotiable. However, if she is simply intolerant then we will not have to necessarily freak about getting a bit of gluten here and there.

After a long conversation with a good friend today, whose daughter happens to have celiac...we are choosing to have a biopsy. We simply want to know how strict to be with the gluten removal! This is a life long strict altering of diet for Addie Claire if she is celiac, and something we want to be sure of before we tackle it physically and emotionally. Stay tuned....